Stefan is Chair of the Patient Expert Center (PEC). The Patient Expert Center is an organization that trains members of patient organizations to become patient experts in their disease area. He is also member of the board of Alzheimer Liga Vlaanderen and advisory member of ProLong, the lung cancer association. He is author of the book “De Stem van de Patiënt” (The Voice of the Patient), that was published in 2025. Stefan Gijssels is the co-founder and former CEO of Digestive Cancers Europe.
After having worked for many years at Johnson & Johnson, Stefan became a patient advocate because of his experience with metastatic colorectal cancer, diagnosed and treated in 2015.
